Sunday, January 31, 2010

New Friends

I have had the good fortune to met some really wonderful new friends who happen to be parents of Type 1 kids. And some of them even live really close by to me, which is nothing short of a Christmas Miracle!
Anyway, my friend Kristin just started a blog about her journey with a Type 1 Child and here it is. Welcome Kristin!

Saturday, January 30, 2010

Lots on My Mind

We have had a very, very busy couple of weeks which were topped off by my parents arrival last night from the East Coast. They will be here for a couple of weeks so it may be a bit more quiet for a while here at ye olde blog. I have been thinking about lots of things these past couple of weeks and just haven't had a chance to sit down and flesh out a real post about them. I hope to write about them soon though.....
Food Therapy(Alix's blog kind of blew my mind this week)
Shelf Life of Your Insulin (Am I the only one who thinks Lantus poops out earlier than the 28 day mark?)
Bagels (probably the worst food for a diabetic EVER!)
Balancing Meals
Support Groups
So...I hope to get to these soon and catch up with everyone else's blogs....

Tuesday, January 12, 2010

Glucagon Practice

I have held onto our one expired glucagon kit on the advice of a very seasoned D mom. She suggested keeping them around to practice on and to train others how to use them. When our first one expired, I shoved to the back of the diabetes supply drawer. Every once in a while, I would notice it and think I really should practice on that just in case. Then I went on to do something else and forgot. And forgot. And forgot. Last weekend a new friend was recounting a story of her 3 year old daughter having a seizure in the middle of the night. I think it is pretty safe to say, everyone at the table, including me, had their eyes bugging out of their heads listening to the story. I went home and took the expired glucagon kit out of the drawer and Chris and I FINALLY tried it out. Then I went down the street to the grocery store and bought three tubes of cake gel to stash around. I also had to email our endo because I had confused sick day mini glucagon dosing with the amount needed to give a seizing or unconscious 3 year old.

I try and shove my fears about seizures and using glucagon to the back of my mental drawer pretty much most of the time. If I didn't, I don't think I would ever sleep or leave the house. But, after hearing a story from someone I know with a child my sons age who this happened to..I felt it was time to face the fear and really prepare myself. It went just fine and I feel just a little less scared about handling this kind of emergency if it ever does happen.

Wednesday, January 6, 2010

Syringe Wielding Mom Injects Son in Moving Vehicle

For some reason, Addison LOVES eating in the car. If we are about to go somewhere, he will hold onto his snacks and wait, literally, until the car pulls out of our non conforming parking space before he starts munching. I know, I eating in the car poses a major choking hazard. We do it anyway. Ah well. Anyhow, when you are on injections this makes long road trips tricky to say the least. We went down to Portland, OR over the Christmas holiday to see dear friends and family. There was a lot of snacking going on in the backseat and very little of those snacks were carb free. Rather than wait until we got to a rest stop, I opted for climbing in to the backseat, unstrapping Addison's seat belt and giving an injection in the belly while in transit. Does all this sound terribly unsafe? Backseat snacking, undoing of seat belts, climbing between front and back in a moving car, wielding a syringe and aiming into your toddler hoping you don't hit a bump? Hmmm..

Sunday, January 3, 2010

You know You're the Parent of a T1 Child When....

You find yourself using a spent, capped syringe as a light fuel container for a light saber (made out of a tinker toy) that has run out of light.  Yes, that's right, I was refilling my son's and his friends pretend light sabers with pretend fuel from an insulin syringe. It was the closest object to me, what can I say!

Friday, January 1, 2010

Some Things I Learned About Diabetes in 2009

2009 was our second year living with diabetes. Although diabetes pretty much always sucks, this year was so much better than our first year with it. SO MUCH BETTER! Some things I learned along the way:

Sugar is nothing to be afraid of. I was so afraid of  regular sugar our first year with diabetes. I went out of my way to avoid it in everything I could and never baked or cooked with it. I bought agave syrup and used it anytime I was baking. This year, I took the plunge and tried out regular sugar and you know what..I can't say that agave really made Addison's blood sugar behave differently than regular sugar. This was a revelation. I still reduce amounts of sugar when baking and avoid candy and processed sweets like the plague AND limit Addison's sweet treat to a small portion but making home made treats with regular sugar was  so fun over the holidays this year. We even made some coconut snowball cookies with powdered sugar on the outside!

My diabetic child CAN get sick and NOT end up in the hospital. The first year of diabetes for us came with two a stomach bug and one a flu like bug. The stomach bug ended Addison up in the ER for an IV drip and the other flu had ketones and fever and lots of extra insulin. They both scared the crap out of me and I turned into a major germaphobe as a result. When he was sick I got sick from worrying. It was enough just to get used to all of his day to day care and the illness on top of it just really threw me for a loop. This year, Addison had roseola and hand foot and mouth disease. Neither one required loads of extra insulin or a trip to the ER. He was miserable but his blood sugars were not too badly impacted. These experiences plus getting the H1N1 vaccine made me feel a little less freaked out about Addison getting sick.

Very hot weather makes Addison's blood sugar run low. 

Baths are just plain weird. I cannot for the life of me figure out baths and blood sugars. It seems that even when we wait 90 minutes after a shot, taking a bath still makes Addison's blood sugar drop quickly.I always have to test him before and after a bath and if he is below a certain number, I give a little snack to ensure he stays up. What in the world do pumpers who get insulin every hour do?

Always keep a stash of extra batteries around for you meters and scales.

I am not the only parent of a type 1 child that doesn't get a whole lot of sleep. As much as I would like to know that there is an end to this lack of sleep sometime soon, it has given me great comfort to know I am not alone.

My instincts are good. Second year in, I am learning that most of time I should listen to myself because my instincts about Addison's care are mostly right on!

Hope everyone had a very Happy New Year! I also hope I didn't end up sending anyone two Christmas Cards! In my rush to get the cards out I may have missed some and double up others! If you got two or none I apologize!!  Cheers!